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Spondylolisthesis

CATLUV started this conversation

Spondylolisthesis is a spinal condition in which the vertebra slips forward from the vertebra below. Spondylo means spine, and the word listhesis, literally means to slip. While this condition is actually fairly common in the population, it is rare for the condition to slip to a degree that is great enough to create problems. Physicians and the medical community label the varying degrees of slippage, from least to most severe, as grades 1 through 5. A complete slip, beyond that of a "grade 5," where the vertebra no longer sits on the other vertebra, is called Spondyloptosis. This condition can occur at any vertebra level, but is more commonly seen in the lumbar region of the spine. This is the area in which I experienced my Spondyloptosis. I am now considered a grade 5 following numerous surgeries, procedures, and a full body cast. There are a number of debated "fixes" (surgeries/procedures) for Spondylolistheis, but due to the infrequency of the condition becoming extreme enough to require surgery, they are more experimental than common practice, in my opinion. I am not a doctor, nor am I an expert on this condition, that is, if you consider an "expert" as someone whom has credentials in the medical field. I have simply dealt with this condition, first hand, for my entire adult life, and the majority of my juvenile years as well. My hope for this page on Spondylolisthesis is to utilize the power of the internet in order to reach as many individuals, in all age groups, whom may be dealing with this condition in their life. Whether the given condition is labeled at a level 1, or if the case is more severe, I hope that my personal experience, insight, and research with regards to the spinal abnormality, may help as many individuals as possible. This condition tends to be less well known than other conditions and diseases, and I found it difficult to connect with any fellow sufferer's during my painful, tough, and life altering struggle with this extremely painful condition. There are many "experimental" fixes for this condition, which are ultimately determined by the grade level found in the patient. I believe that it is highly important for anyone whom faces decisions regarding medical intervention be able to obtain as much information, even the detailed and nitty gritty (if you will), so that they may truly be able to choose the best option(s) for their specific case. Not only are there a few different surgical and medical procedures as possibilities for treatment, but there are also a few alternative options that may work well for both an intervention, along with possible combination of treatments, which may result in a more rounded and promising future for a patient. Treatment is often determined by the severity, but even in the most severe cases, there are a few options that may not be presented or addressed by a provider, therefore limiting options, and resulting in a rush for the operating table. Now don't get me wrong, I am not opposed to surgical intervention, as my condition was very severe, and without immediate intervention, my overall quality of life would have been bleak, even deadly. I would also like to note, that like many surgeries, whether it be on your spine or your heart, surgical intervention may assist in increasing the overall quality of life, but it rarely, if ever, makes one "normal" again, nor "fixes" the health issues completely. This is a myth. There will always be a sort of "life long up-keep," which is required to assist in allowing your body to work the best way possible, in a less than normal state. Again, this is my opinion, which is based simply upon my personal experiences, observations, and research. 

I hope that anyone whom may be just learning of this condition (parents who are educating themselves with regards to their child's recently diagnosed condition, any adult that has just been diagnosed, and is seeking information, resources, options and help, along with those veteran Spondylolisthesis sufferers), may take time to research the condition to the best of their ability, ask many questions, thoroughly investigate all options that may be available (both western medicine and alternative health care), and feel free to contact me with any questions, advice, stories, or anything else that may be prevalent to the goal of assisting each other in making the pain, along with our general quality of life, a little better. This condition is a life long presence and battle. It can be very scary, painful, and all around difficult. I will share my timeline from my earliest pain and symptoms, to my surgeries, and ultimately, my current struggles. I pray that this page may help both those facing a Spondylolisthesis diagnosis, along with anyone whom finds themselves seeking support for a family member or friend. Even if I only manage to reach just one person struggling to stay afloat in this overwhelming process, I will be grateful that my painful experience was able to make another's less frightening and isolating. I know that there are others out there, and I cannot allow those who are facing the same daunting unknown, struggle through the darkness, when I have already walked the journey. 

As a last note, if you are dealing with ANY chronic health condition, please take a moment to read both the poem "Footprints In The Sand" & "The Spoon Theory."  ~ Blessings ~

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CATLUV
 in response to sue49...   

Hi Sue,

Wow, you are probably really exhausted right about now. I have several things to say & a number of questions regarding your son's condition & surgeries, but first I will say that no, I was able to "walk." I experienced permanent nerve damage in both legs/feet and cannot lift my toes or manipulate them specifically on my right foot. I am not sure which surgeries your son underwent, as there are several ... some not as "good" - so to speak - as others regarding the outcome, both acute and long term. I first had a laminectomy, a foot long insicsion from my mid to low back. For the 8 days following I was in full body traction (it was supposed to be 2 weeks in duration, but on the 7th day I could no longer feel my feet or move them), with a halo cast on my head - four screws inserted into my skull - and then two long rods thru both of my knees. Ropes were attached to the respected ends with weights that hung at each end of the bed, which were increased daily. This process was to "stretch" my spine, taking it from a full slip (Spondyloptosis) to a grade 5, a total of 3 and a half inches gained in height, which gives a visual of how far my spine had fallen. The second surgery was via my abdomen, where they temporarily removed my lower internal organs to reach the front of my spine. They fused my L4-S1 this way, using two titanium screws, a femur bone, and then they used a hip graft, taking a chunk of my right hip to complete the fusion. I was in a fully body cast for a total of 4 1/2 months. For the first 2 months I remained in bed and was unable to be vertical, which was to allow the fusion to become solid. The third month I was placed in a rehabiliation unit to first get me upright, slowly but surely, and then on my feet. At that point I hadn't regained any of my ability to move my feet. Over the next year I underwent intense physical therapy, both while in the cast and then after, while wearing a body brace. I did regain a small degree of functioning and sensation in my feet, although not the amount that they anticipated ... but then again, the condition was very severe and nothing that they had dealt with before, and it sounds to me that your son may also be in that category. 

With regard to the pain level, my pain actually decreased following the surgeries. I was in so much previous to the "correction" that my skin was literally grey in color. I didn't know that people lived without this type of pain until my surgeries were complete. I am 13 years plus post op, and the last 5 years I have been experiencing increased pain levels, mainly connected to the fact that once a spine has been fused at any location, the vertebra above and/or below compensate and overwork to support and function. I have fairly severe degeneration, deterioration, and early onset osteoarthritis above my fusion, mainly at the L4 thru L2. There is also a question of my nerve/sciatic stability, but due to the fact I have an extensive fusion and hardware in my back, they cannot be certain of what may be going on.

It concerns me that your son is in more pain after the surgeries. I would be interested to know what specific surgeries and procedures were done, and what degree the Spondyo was at pre-op and post-op. I have several other questions, but I don't want to overwhelm you, as I know you are probably at your wits end already (I hope that i haven't already done just that with all I have already written). I would be happy to speak with you further, and answer any questions you may have, as well as offer some ideas and possible tools to assist you and your son. I know that it is a very different experience for the parents than it is the child (patient), ... a very stressful, confusing, exhausting, painful and scary time for both, and I would encourage you to consider corresponding with my mother, if that at all interests you? 

I am happy to help in any way I can, and if you'd prefer to message privately or via email, we can do that as well. Let me know what your thoughts are, ... I know that this situation can feel very lonely, as there are few people out there able to share about this experience, and even fewer doctors have dealt with such extreme cases. Unfortunately, it seems that it's very much a hit or miss type of condition. I hope to hear from you again, and remember to try to take care of yourself as well. 

Blessings of health, strength & peace, Cat

reply to CATLUV
sue49

My 14 yr. old son had 2 surgeries in July to correct spondyloptosis.  He has been in extreme pain and unable to walk since.  Did you encounter anything like this?

reply to sue49